Hey everyone. Happy Sunday to you. Matt and I stayed at our apartment last night. Ellie was having a good night and she has had a good morning. We needed some sleep. I will give you all a little insight as to how tired we are. I walked in the apartment, got a drink of water, and then went straight into bed. I feel asleep in about a minute. It doesn't hit us how tired we are till we are in the car headed home. When we are at the hospital, our only focus is Ellie. You don't think about anything else. I guess in a way you could say it's kind of an adrenaline rush. Something else takes over and tired is not even a word.
Ellie was having a much better day on Saturday then she was on Friday. I am not sure what was happening on Friday. Her oxygen level was up on Friday along with her carbon dioxide reading. She looked uncomfortable. Yesterday when we got back to the hospital, she looked so much more comfortable. Her levels were a lot better and her carbon dioxide reading was down from Friday mornings reading. When I called this morning, her carbon dioxide reading was down again! That is such a positive to us. Her oxygen level was still a little lower than it was Friday.
Ellie is also still opening her eyes and now is twitching her hands and feet. How I love to see this. The nurse asked yesterday in rounds if that was ok. The doctor said that as long as Ellie's levels hold strong and she does not become agitated or stressed, he is ok with. We were told he was actually happy that she was opening her eyes and her levels were still strong. They think a possible reason for her waking up while on a paralytic is that due to her weighing more, she could be outgrowing the dose they have her on. I choose to believe that it is God. He is capable of all things!
From reading the past few days, you guys know some of what we are up against. I would be lying if I said I wasn't scared or worried. I am. But I have the Lord on my side. With that I will always have hope. He has carried Matt and I through so much the past 16 months. We both agree that we could not do it without our faith. I don't know how someone goes through any kind of trial or heartache without it. If you don't have the a relationship with the Lord, my prayer is that you would invite Him in to your life today, this minute. I will tell you it will fill you with a joy and a peace that you have never known.
Thank you all so much for your prayers for Ellie. We know that God is capable of any miracle. If you could please pray this week for Ellie to continue to improve overall and that her pulmonary hypertension does not worsen. Matt and I thank all of you again for everything you all have done for us. We are so blessed to have such a awesome support system. God is so good!
Love,
Ellie's Mommy
