Ellie and I had our first mommy/daughter sleepover. Well if you want to call it that. Ellie slept for a little while but mommy not so much. I guess since Matt wasn't here I was a little more in tune with what was going on. I slept about 3 hours. Ellie woke up about 6:30 am and just fell back asleep. I don't mind one bit the lack of sleep I have. It is so worth every minute of it. To sit there and just watch her little eyes open and feel her fingers tighten around mine, makes my day. It was so cute because it seemed like each time I thought she was falling asleep, I would start to get up and go lay back down and there she would be little eyes open again. She knew I wouldn't dare leave her. Just like she was saying not yet mom, no sleep for you!!! These kind of moments, make me feel like we are just a normal family. Living on no sleep and cherishing each moment of our 7 week old little girl.
Then, the doctors come around. Still no changes today on Ellie and we still have not heard if and when on the surgery. I can tell you right now I am frustrated, very frustrated. I just want them to talk to us. It's hard going on like this from day to day. These are the moments that I just have to trust. Trust and know that God is in control.
Ellie's blood gas was still in the higher range today. I asked the surgeon specifically about that. Since Ellie is awake a little our concern is that maybe that is causing the higher gases. With her being more awake, she has more control over her body and could cause her airway to close here and there. He told me this morning that as of right now he is not concerned. If her gases continue to stay higher, then they will have make a vent setting change. Please please pray that Ellie's gases get better. I don't want them to have to increase her sedation or make any new changes on her. Matt and I love getting to see our beautiful little girls eyes open. It gives us such joy I can't even explain. I just hope we don't get that taken away from us again.
If we hear anything today, I will update everyone. Thank you all for everything. We appreciate it so much.
Love,
Ellie's Mommy
