Good Morning or should I say not so good morning to us. I awoke this morning to what I and several others have taken as a very negative comment on our blog. To this person- How dare you? You have no idea the situation we are in. You do not hear the different directions we are sent each day sometimes several times a day as to how to treat our daughter. You have no idea what it is like to lose your first child and then have your second child so sick that the doctors are unsure but TRYING to find ways to treat her. Do you think we want our Ellie's life to be this way NO. We hold out hope, we pray to God for answers as to what to do. Until you have been in our shoes, do not tell me that as a parent you understand. You don't understand. If you cannot be positive about our daughter and her care and treatment, then please stop reading our blog. If you think that we do not realize how sick our daughter is then you must be crazy. I am so shocked that someone would have the nerve to leave something like this. Comments are supposed to be positive for Ellie. This was not. To insinuate to let our daughter go is not your call, that is the Lord's and the Lord's alone. Our baby girl is sick and the doctors are trying everything they can to treat her. I am sorry to everyone that does read this and tries to be positive for us to have to see me write something like this, but I couldn't let this go. I had to address this to this person, but since they left their comment as anonymous this was the only way I could do it. Whoever this was I will pray for you. I hope you feel regret over being so negative about a innocent child. Matt and I are doing our best and following what the doctors are telling us to do at this point. The biggest doctor we are following is the Lord and right now this is where He has us. He will continue to lead us and we will trust in whatever direction He takes us. How hurtful this comment was to us. Have you not read about how much of a fighter our child is. That should be enough alone to know that right now the Lord is not done with her. We are trusting and believing in that. God has taken care of us through this whole storm we have been in and I know He will continue. Again to all of our faithful readers, I am sorry you had to see me respond this way. Matt and I feel and agree that the Lord is going to tell us what direction to head in and that is what we are trusting in. I am also removing this comment from the blog as it is too hurtful for me to look at and know someone left that on our Ellie's blog.
Again guys I am sorry for having to make a post like this, but I felt and talked with several other friends and felt it needed to be addressed. This is our child and we love her like crazy and are doing everything we can to help her. God gave us a gift in Ellie and we are enjoying every moment we can.
I will update you all later. Thank you all for your support.
Love,
Ellie's Mommy
Children's Child Life department made molds of Ellie's hand and foot. The molds are made of the same material that dentists use.
Ellie had a bath and was having a bad hair day!
